Luzeady I didn't know what Lupus really was, until I was diagnosed 18 years ago. Would lose myself in a book. I am 24 years old and i have lupus. I then decided I was not going to let it stop me doing what I wanted to do. I hold down a 40+ hour job and we own 40 acres. My primary doctor told me it was mono. It affected my kidneys, liver, brain, and joints.
I spent a month in the hospital, and they said I had a 10% chance to live. I encourage anybody who gets the diagnosis to do as much research as possible so you can ask the right questions and communicate effectively with your rheumatologist. Knowing what ravages steroids and non-steroidal anti-inflammatory medications could cause, and knowing that this was the traditional approach of treatment for arthritic like conditions, I hesitated to seek medical advice. It has been a hard battle, I also just found out I'm going to be a mommy! I am a Lupus Survivor. A few months later, my life became a terrible nightmare. I slept at every opportunity, sometimes as much as 18 hours a day.
I am not a part of it. The next year I nearly died from kidney failure and blot clots in my lungs when pregnant with our son. I am now 22 years old and I struggle everyday but I have hope for my future and I keep a positive attitude. Shantel I was sick since I was 15 or 16 years old, and it wasn't until I was 21 years old and pregnant that they found out that I had lupus. I have been married to the love of my life and my best friend for 33 years. I was sleeping 14+ hours a day, not understanding why I was so tired. I just finished a three month cycle of cytoxan feeling better than I have in years.
I say finally because it was a long eight-ish years of being sick! But I want to share with you some words of encouragement…each day is a new day! He is hospitalized as we speak again. Since then I've been hospitalized mostly for cardiac issues. When I was first diagnosed, I wanted to be able to pour out my feelings on paper and tell others about lupus to raise awareness for an underfunded disease. I prioritize rest, healthy eating, and exercise. My family and friends are a great source of strength for me. Most of all, what helps me get through this is my four wonderful children who give me strength every day.
It's hard to explain and even harder for others to understand when I don't look sick. I had to see the doctor. Jolene I was diagnosed with lupus 2 years ago, after several tests. They said it wasn't that bad. Monique, diagnosed with lupus nephritis in 2010 I've had to miss out on work, weddings, and many other personal events. About Blog Miz Flow writes openly and honestly about her struggles with lupus, like affording treatment as a recent college graduate and dealing with hospital visits, as well as other events in her life, like the passing of a friend.
I decided I was a tired mother. As well as providing all of the necessary information and documents to my future Lupus doctor, Sick Kids provided me with a transition appointment to help prepare me for my new experience. Frequency about 4 posts per month. Never give up, don't lose hope and stay strong! Exposure to sun will precipitate a flair so my life style is to avoid the sun, eat a diet rich in fresh vegetables, fruits, fish, chicken, grains, ground flaxseed and eliminate simple carbohydrates. Paula I was diagnosed lupus when I was seventeen. I wanted writing to help me process all that was thrown at me so quickly. I have a very supportive husband who helps me every step of the way.
I pledged to do everything in my power to avoid replacing the other. Since then life has really changed. The ravages of Lupus had destroyed the cartilage in my knee joints, and after a traumatic fall on both knees several years later, I experienced unrelenting intractable pain in my right knee. My parents were told to start making funeral arrangements. I fight every day to watch my daughter grow.
I started to lose so much weight and my skin was starting to change. Keep track of your symptoms. Shell I was diagnosed in 2006 after being misdiagnosed four times. I created and published a number of books to help me fill my mind with positive, uplifting and encouraging thoughts. Including congestive heart failure which has lead to 2 heart surgeries as well as collapsed lung. I feel embarrassed to say what I have because I'm young and people don't understand.
I also get plenty of rest. I spent about 4 months in the hospital. Why do I have to live with constant and unbearable pain? Hi I'm Cynthia from Cebu, in the Philippines. I also have a fundraiser every May for Lupus Awareness to raise awareness to those that don't know. Out of this frustration and pain, I decided to start a lupus foundation in India. I've realized that attitude is everything.